Having a baby with chronic medical conditions has been the hardest thing I have ever done in my life. The roller coaster of emotions, mixed with all the unknowns has stretched me far beyond myself and my own strength. I don’t know how I could manage to do it without my faith in God, because leaning on Him and trusting Him and my faith in HIM has been the only thing keeping me going through it all.
In April we were told that our 3.5-year-old son’s rare bile duct/liver disorder was fixed after 11 surgeries and 3.5 years of struggles and battles with it. Unfortunately, we found out this week that is not the case, as it reared its ugly head again.
More doctors. More tests. More ideas of what to do. More trying this or that. More unknowns.
We continue to lean on God and trust the truths and promises He has given us. We continue to focus on the blessings in our lives and soak in every one of them, large or small. We continue to love and pour ourselves into those we love even when it is hard. And He fills us back up.